Grace is about the sweetest of little girls I've ever met and if you didn't know she was born with this defect you would never be able to tell!!!
Upon learning of the diagnosis, Grace's parents were overwhelmed, but became very hopeful as their knowledge of the defect increased. Grace's symptoms were enough to scare any parent, trouble feeding, growing and maintaining weight, but despite these terrifying symptoms her parents were very satisfied with the overall health care that she received.
Grace is a year post surgeries and all the scary stuff that surrounds her diagnosis, however, she still has follow-up care, but is doing well!!!!
A life threatening diagnosis can change anyone's outlook on life, Grace's parents are simply thankful for every minute they have with her. They found their strength in having faith and when asked what their advice to others who may find themselves in a similar situation they said "Have faith and find the best doctors you can!" A little piece of wisdom they wish to pass along is "God does not give you more then you can handle! We have learned this!"
